RIMS organises capacity building programme
Source: The Sangai Express

Imphal, December 28 2024: Regional Institute of Medical Sciences ( RIMS), Imphal today successfully organised a 1-Day Capacity Building Programme on "Rare Diseases" at Sushruta Hall.

According to a release issued by RIMS, the programme aimed at enhancing awareness, diagnosis, and treatment strategies for rare diseases, equipping healthcare professionals to address associated challenges effectively.

Prof G Sunil Kumar Sharma, Director of RIMS, inaugurated the programme, emphasizing early diagnosis, improved treatment protocols and collaborative efforts to combat rare diseases.

The event featured presentations by distinguished speakers, including Dr L Swasticharan, Additional DDG & Director EMR, MoHFW; Dr Kuldeep Singh, HOD, Pediatrics, ARMS Jodhpur; Dr Amita Moirangthem, Associate Professor of Medical Genetics, SGPGI Lucknow; and Dr Aastha Chugh, Technical Consultant (Rare Diseases), WHO India.

Sessions covered the National Policy for Rare Diseases, care challenges, opportunities, and the hub-and-spokes model for addressing rare diseases in India.

Prof Ch Shyamsunder Singh, HOD, Pediatrics, RIMS, discussed regional strategies for tackling rare diseases.

Additionally, RIMS hosted an expert panel from December 27-28, 2024, to evaluate its readiness for designation as a Centre of Excellence (CoE) for Rare Diseases.

The panel conducted compliance verification, facility inspection, and reviewed capacity-building initiatives with discussions focused on prevention, treatment strategies, and replicating successful models from AIIMS Jodhpur and SGPGI Lucknow.

Recommendations from the panel will guide preparations for CoE recognition, strengthening RIMS's role in rare disease management and research.

The programme was attended by the Nodal Officer for Rare Diseases and Rare Diseases Committee members of RIMS; State Nodal Officer (Rare Diseases), Manipur; Nodal Officer for Rare Diseases at JNIMS, Imphal; Dr B Nanaocha Sharma, Scientist E, IBSD Manipur; Dr H Nabakishor Singh, Consultant Plastic Surgeon, Shija Hospitals; representatives from Pediatric Association of Manipur and FOGSI, Manipur State Chapter.

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