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E-Pao! Profile Feature - Soibam Birla Devi

Soibam Birla Devi
- Doll Maker -

By: Thingnam Anjulika Samom *

Differently abled, disabled, handicapped, crippled – the terminology might differ according to one’s ideological leanings, education and empathetic understanding.

However, ideology, education and empathy apart, each of the words brings forth a picture – of a life less abled, of a childhood stripped of its joyful essence, of an adolescence void of love’s sweet murmurings, of an adulthood dependent on others’ sympathy, of a forlorn past, a bleak present and an even unpromising future.

Yet amidst such intense suffering great fortitude often bloom and spread its sweet fragrance, as exemplified in the person of Soibam Birla Devi of Laipham Khunou Mamang Leikai.

The youngest of six siblings – four sisters and two brothers — born to late Soibam Ibomcha, a practicing traditional Maiba, and Mani Devi, a housewife, Birla’s initial years were one of joyful exploration and loving care as in the case of all children.

Soon after she crossed the second year of her life, tragedy struck, and the young Birla who had just learnt to walk on her own was soon sentenced to a lifetime of dependence on other’s support for even her basic physical functions. What was initially diagnosed as a kind of cyst near her left ankle soon required a minor operation.

But the real problem started after the operation. An important vein in the region of the ankle was affected by the operation and soon her left leg became paralyzed. Her spinal cord was also affected and her whole body became misshapen as a result.

In medical terminology, her condition is said to be “paralysis following cord compression at 711 to 12 pimps” making her 75 percent disabled. She also suffer from many other associated side effects of her condition such as kidney stones, piles and digestive problems, making her stick to just one square meal a day to alleviate her problems.

“We tried everything. We consulted many traditional maiba for their skilled massages, and performed so many rites to appease the gods. We went to Vellore, Guwahati and consulted many doctors, but nothing came out of it,” says Birla’s mother, Mani Devi. In her early days Mani used to weave clothes but now she spends most of her time looking after her daughter and helping her.

“The doctors at Vellore told us that there is no hope for any kind of cure. The only option is for them to cut up her body into bits and pieces and then re-structure all the pieces together to form a new body. We felt that this is no way one should live. Whatever shape my body is in, let me spend the rest of my days in peace with my body,” says Birla.

Birla makes dolls and other decorative items for a living. “From my childhood I liked playing with toys. I had no friends and these dolls were my playmates. Soon I learnt how to make them after closely studying the model my mother brought from the bazaar,” she says.

Laidhee (Dolls) of all shapes and sizes at the 2nd Eco-Crafts Bazaar, 2007


She also do hand embroidery work, sometimes working through the night to complete work on a phi in three days flat. “There are lots of training programmes I have heard about and want to enroll, but I am unable to do that as it would involve someone else to help me,” she says.

Birla has participated in various mela and exhibitions in the state. She was also given the state merit award last year for her work.

“Whatever I earn goes towards my medical expenses which come to about Rs 3000 every month. On top of that I have to have a blood transfusion every year, and sometimes it is just difficult trying to make ends meet on my own.

It is during such times that I get depressed and rue my fate and scold my mother for being unable to help me. I know it is not her fault, she is trying her best to help me.

But she is uneducated, and over all growing older. I should be helping her in her old age, and here I am, making her care for me even at this age,” she says. Birla is 29 years old.

Birla’s despondency has a golden side – it makes her heart large enough to encompass the suffering of many others. “What I can save up after all the expenditure I give to the orphanages. I know I don’t have much money but I also know that these children are as destitute and unfortunate as I am.

I myself have faced lots of problems due to my condition – even close friends and relatives sometimes forget I exist. And I know how lonely it is to be unwanted. These kids have no one of their own. If I could share in their joys and sorrows, my life is worthwhile,” she says.

“I have already told my mother. When I die, don’t do all the religious rites for me, don’t cremate my body. I want to donate my body to medical science, to the doctors so that they can use my lifeless body to further the benefit of humankind,” she continues.

Birla loves listening to songs, especially those of Sadananda and Roshibina, and watching films. “I have watched most of Sadananda’s films,” she says. Her favourite film is “Eidi Lakkhide” starring Sadananda and Manda.




Thingnam Anjulika Samom wrote this article for The Sangai Express . You can contact the writer at thingnam(at)yahoo(dot)com . This article was webcasted on May 01st, 2007


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